Sir,

My name is Tanya Grey. We have just moved down to Pembrokeshire to start a new chapter in our life and our two children have joined St. Teilo’s Catholic Primary School in Tenby.

We have two children, Lola Grey, who is 10-years-old, and Finlay Grey, who is six. The reason for me contacting you is that I wanted to share with you the warm welcome we have received from St. Teilos since our children started there in December last year.

Finlay has Haemophilia B, which is a hereditary rare blood disorder, whereby patients have reduced or zero levels of clotting factor in their blood. Haemophilia A affects one in every 5000 males, whereas Haemophilia B , which is what Finally has, affects one in every 30,000 males. (1156 registered patients in the UK with Haemophilia B).

Every year the Haemophilia Society (which is a UK charity) host a World Haemophilia Day (April 17) to embrace the people living with Haemophilia and help to spread the understanding of this bleeding disorder.

This date was in the school holidays, so we asked St. Teilo’s if we could celebrate the day early, during term time. This was really important to Finlay as he wants people to understand more about Haemophilia and why he can’t be involved in contact sports such as rugby, but also why he may sometimes worry more than other children if he hurts himself.

St. Teilo’s agreed to hold a ‘Wear Red for Haemophilia Day’ on Friday, April 7, and raised a total of £90 for the Haemophilia Society. They are thrilled and will mention St. Teilo’s Catholic School in their next HQ magazine publication.

It would be great if you would help to publicise the great community spirit of our small school in Tenby and help raise awareness, too, of Haemophilia.

Tanya Grey